Wednesday, December 31, 2008
Can't help but think about something that was said
It has been around six months ago that someone said how pitiful me and my children were and it was the internet of course. Off and on I have thought about that comment. If anyone thinks we are pitiful, you should look at their most recent pictures. They are very happy children.
No, they don't enjoy surgeries and all the other medical stuff. But we still have joy in our lives and no one can take it away.
There are those who believe in me and my children and know that I know exactly where I stand today with everything.
So into this new year I ask that anyone who looked at my children's pictures and felt pity to really look at themselves instead.
Take Care
Chasity
The New Year
Well the last few weeks have been pretty hectic for us. On top of Isabella having cancer again. The margins were not clear and there are many things being studied right now to decide what treatment will the best option.
Her stoma has also been bleeding sporadically ALOT. Like spurting because of her dilated veins so we had to deal with some anemia but that seems to be under control now.
Landon on the other hand has been cruising. He is quite the little fella. He is my main man and she is the princess.
We all did get some nasty viral respiratory stuff over Christmas and were some nebulizing and medicine taking people. But we are mostly recovered now.
We had a wonderful holiday and look to the new year for more positive things for Isabella and Landon.
Monday, December 15, 2008
AFP SUCKS
Do you know why it sucks? Because her AFP was only 11.
That is almost normal. I really didn't think all this was going to come about. The more I think and the more I read. I just don't have as good of a feeling as I had about her before.
I am worried that cancer could have sneaked out to her lungs or something.
Most likely it hasn't. But she never goes by the books and her body does the opposite of what should when it comes to this stuff.
So you know, the possibility is there.
Isabella's margins were not clean
Isabella's margins from the lesion on her right lobe was not clean. The way this presented there is a possibility it could be in many places in her liver but the scan or bloodwork wouldn't show it yet. At what point can that damn liver just stop doing shit. Why can't she have a break? You know. To look at her you would never know the will she has and how strong and how brave she is. In the hospital after being cut from pretty much side to side. She didn't cry out of pain, just cried for me to be near her.
She handled herself better than most adults do. That breaks my heart that a 2 and 1/2 child has already learned to be that strong. She is beautiful and you would never know the inside her lurks this liver that is terrozing her. She has had so many surgeries, her stomach looks like a battlefield.
I am not sure what all I can say about this new information or what it means yet. The doctors are still discussing treatment options and she is a very rare case.
You know, we just need to pray for her to be happy no matter what happens. Her happiness is the most thing. I just don't want her to without joy.
Thursday, December 11, 2008
Final Pathology on Isabella came back as Cancer
Hepatoblastoma in the right lobe of her liver. Last year it was in the left. That is all I know right now. We are still gathering information for how to treat and what will come next.
Tuesday, December 2, 2008
No Cancer!!
The results were great no cancer!! But Isabella is older now and this surgery was much harder on her. Her incision across her tummy is about 6 inches and there were lots of scar tissues and adhesions from previous surgeries. So it was a big surgery. Mommy slept in the hospital sized crib with her the whole time.
I am exhausted. We came home yesterday and well she is tired. Thanksgiving in the hospital, just isn't fun.
I know I have some catching up to do and will be taking care of as much as possible this week!!
Take Care
Chasity
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