Sunday, June 21, 2009

Its been a long time


I can't say anything except busy. Transplant went great but we have hit our bumps in the road. Isabella has faired well but she has been through alot. We have had an episode of rejection, bile duct narrowed and required tube and drain and we just removed her port and brought her home with periph. Iv to do Vancomycin. I want to write alot more because we have had tons of good stuff as well. But we have been so busy.
Landon's heart appt went awesome and guess what. He can go 9 months before his next visit!! Go Landon!! Wahoo! Hopefully my head will rest this week and I can type some more details.

Chasity

Tuesday, March 24, 2009

VERY IMPORTANT


For now, I am going to be using Isabella's COTA website for all updates related to her. I really need the fundraising to get pick up and it will be easier to post there and not 2 places. SO FOR UPDATES ON UPCOMING FUNDRAISERS AND HOW ISABELLA IS DOING VISIT

WWW.COTAFORISABELLAG.COM

THANK YOU ALL!!
LOVE
CHASITY

Monday, March 23, 2009

Isabella has rec'd a liver


On Saturday, March 21 of 2009 I received a liver that is a perfect fit for her. This liver can last her a lifetime. I have seen miracles and amazing things, but words can't describe this. She is doing very very well and the liver is functioning. She is still sedated but they will probably start weaning her meds today so we can get her off of the ventilator.
Alot of prayers went out and they were answered and I am so grateful and my heart is so heavy with many emotions. But please rememember that we were blessed but somewhere another family suffered a loss that gave Isabella a better life. Please keep them in your prayers.

I will try to update more but computer access is hard and I am just tired. But please spread to those who have followed and now more than ever I encourage donations. Even $5.00 can help.
Love,
Chasity, Isabella and of course Landie Lou:)

Tuesday, March 17, 2009

These are all the fundraisers we have going!!


http://www.magfundraising.com/isabella
We earn lots of $$ for every subscription sold!!!
www.igive.com and choose COTA for Isabella Gwinn as your cause!!
Remember you can also donate directly using the link on the right.
Check to make sure your company doesn't match donations.

The time has come to kick up our fundraising efforts as we already got a call last night for a possible liver but it did not come through for some pretty rare reasons and we need to raise money to help while I am without work. Isabella is starting lose her hair. It has been cut and before long she will be bald.

Wednesday, March 11, 2009

She is listed


She is officially on the list!

Tuesday, March 10, 2009

I should be posting more and I will...


I promise. So much is happening. Isabella is tolerating the chemo very well. Her counts are great. She will officially be on the transplant waiting list for a liver tomorrow. We have the final clearance from insurance and so it is a go.

This is very scary and good in so many different ways.

But we have to get the fundraising going!! Got to push her site as much as possible. I wish I had more family support and volunteers to help fundraise. But honestly, the online crowd well is my family. We are going to do some local fundraisers but it is hard because there isn't really but one person locally willing to help at all.

I will post more as the week goes by I promise. I just have to get my head straight and my thoughts clear!

Monday, March 2, 2009

All Around Update


Sorry, my internet access has been limited lately.Isabella has completed her first part of the chemo course and will receive the next dose on 3/9. She has tolerated it well for the most part. But we have to stay right on top of her nausea meds or she just becomes immobile and will not move. So far so good. We did an echo while in the hospital and her heart looks great. It looks like she will be listed sometime next week.
Landon is all smiles as usual and we have posted some new videos finally!!

Please, please help us raise funds for the transplant and use the link to the site on the right. Every dollar helps!
More to come....
Love
Chasity